Florida Senate - 2012 SB 282 By Senator Wise 5-00287-12 2012282__ 1 A bill to be entitled 2 An act relating to health care transition programs and 3 services for adolescents and young adults who have 4 special health care needs; providing legislative 5 intent; establishing a program within the Division of 6 Children’s Medical Services Network in the Department 7 of Health to implement health care transition programs 8 for adolescents and young adults who have special 9 health care needs; specifying duties of the office 10 with respect to the oversight, implementation, and 11 coordination of the program; requiring that the 12 program provide technical assistance to communities, 13 providers, and organizations; requiring the Department 14 of Health, in partnership with the Agency for Health 15 Care Administration, to identify options for 16 addressing the compensation of health care providers 17 and improving access to adult and specialty health 18 care for adolescents and young adults who have special 19 health care needs; requiring the Department of Health 20 to work with the Office of Insurance Regulation to 21 explore and recommend effective policies that address 22 medical management and health care transition services 23 for adolescents and young adults who have special 24 health care needs; requiring the Department of Health 25 to work with community-based pediatric and adult 26 health care providers to explore and recommend the 27 development of local health and transition services 28 programs in each of the regions of the Children’s 29 Medical Services Network; providing requirements for 30 program structure and design; specifying the services 31 that may be offered by local health and transition 32 services programs; requiring that at least one 33 proposed health and transition services program be 34 associated with each region of the Children’s Medical 35 Services Network; requiring an evaluation of the 36 program; providing an effective date. 37 38 Be It Enacted by the Legislature of the State of Florida: 39 40 Section 1. Legislative intent; health care transition 41 programs and services for adolescents and young adults who have 42 special health care needs.— 43 (1) It is the intent of the Legislature to provide a 44 strategic and comprehensive approach to the development and 45 implementation of effective health care transition programs and 46 services for adolescents and young adults who have special 47 health care needs. The Health Care Transition Services Task 48 Force for Youth and Young Adults with Disabilities developed a 49 statewide plan to promote the development of such health care 50 transition services in accordance with chapter 2008-211, Laws of 51 Florida, and outlined the plan in the task force’s subsequent 52 report. 53 (2) A program called the Florida Health And Transition 54 Services (FloridaHATS) is established within the Division of 55 Children’s Medical Services Network, which shall be responsible 56 for: 57 (a) Overseeing and implementing the national maternal and 58 child health goals, using existing state plans, in order to 59 implement effective transition programs for adolescents and 60 young adults who have special health care needs. As used in this 61 section, the term “adolescents and young adults who have special 62 health care needs” means individuals who are 12 through 26 years 63 of age; who have chronic physical, developmental, behavioral, or 64 emotional conditions; and who require health care or related 65 services of a type or amount beyond that which is generally 66 required by adolescents or young adults. 67 (b) Developing a planning and implementation process and 68 the necessary guides for use by community providers and 69 organizations in developing coordinated systems of services for 70 adolescents and young adults who have special health care needs. 71 The coordinated system of services shall include different 72 models that accommodate the geographic and cultural diversity in 73 the state and that are adapted to the local needs of communities 74 and to local health services delivery systems. Furthermore, the 75 models shall promote the integration of health care transition 76 services with transition programs in education, vocational 77 rehabilitation, and independent living, and shall address the 78 varying needs of subpopulations, such as students who are 79 enrolled in postsecondary educational institutions and 80 individuals in the child welfare or juvenile justice systems. 81 (c) Developing and disseminating resource guides that 82 outline the various public and private health care financing 83 options, including commercial insurance, and the respective 84 health care benefits. 85 (d) Coordinating the program with educational institutions, 86 including medical centers, to identify and make available for 87 health care providers existing training programs regarding the 88 principles, objectives, and methods for the successful 89 transition of adolescents and young adults who have special 90 health care needs to adult health care providers. 91 (e) Maintaining and updating the FloridaHATS’s website with 92 web-based materials related to health care transition services 93 which can be used by adolescents and young adults who have 94 special health care needs and their families, providers, and 95 others involved in health care transition. 96 (f) Collecting and disseminating information in specific 97 clinical areas concerning evidenced-based practices and best 98 practices for providing health care transition services for 99 youth and young adults who have chronic special health care 100 needs or disabilities. 101 (g) Providing technical assistance to communities, 102 providers, and organizations that are involved in the 103 development and implementation of systems of services for 104 adolescents and young adults who have special health care needs. 105 (h) Developing and disseminating quality improvement and 106 evaluation components for health care transition programs. The 107 quality improvement and evaluation components must include a 108 common or comparable set of performance measures for all 109 entities that provide health care transition services for 110 adolescents and young adults who have special health care needs. 111 (i) Establishing a network of experts in the fields of 112 pediatric and adolescent medicine, adult medicine, and allied 113 health to provide technical assistance and recommendations 114 regarding best practices and policy guidance in health care 115 transition. 116 (3) The Department of Health shall work in partnership with 117 the Agency for Health Care Administration to identify potential 118 waiver or state plan options that address health care provider 119 compensation strategies, including, but not limited to, co 120 management, care plan development and oversight, provision of a 121 medical home, and use of telehealth technology to improve access 122 to adult and specialty health care for adolescents and young 123 adults who have special health care needs. 124 (4) The Department of Health shall work with the Office of 125 Insurance Regulation to explore and recommend effective policies 126 that address medical management and health care transition 127 services that are based on a patient-centered medical home model 128 for adolescents and young adults who have special health care 129 needs. 130 (5) The Department of Health shall also work with 131 community-based pediatric and adult health care providers to 132 explore and recommend the development of local health and 133 transition services programs in each of the eight regions of the 134 Children’s Medical Services Network which meet the following 135 requirements: 136 (a) The proposed program structure and design must be 137 adapted to the needs of the local community and health services 138 delivery system; however, the following elements shall be in 139 place in order to ensure the success of a local health and 140 transition services program: 141 1. A consultative partnership between adult and pediatric 142 health care providers in a major medical health care 143 organization or an academic medical setting for purposes of the 144 transition of adolescents and young adults to adult health care 145 services. 146 2. Community-based health care services that are provided 147 under agreements with major health care organizations or 148 academic medical centers for the purpose of providing 149 consultation concerning the management of special health care 150 needs. 151 3. Community-based support organizations that can provide 152 assistance with services such as supported living and 153 employment, health insurance, and support services to maintain 154 the young adult in the community. 155 4. A medical home that provides for coordinated and 156 multidisciplinary care and focuses on engaging adult health care 157 providers in the care and treatment of adolescents or young 158 adults. 159 (b) The following services must be offered by the local 160 health and transition services program to individuals who are 161 served in the local health and transition services program: 162 1. An assessment of health needs, education and vocational 163 status and needs, and health insurance status. 164 2. In coordination with the educational system, community 165 based organizations, and the vocational system, a plan for 166 transition services, which includes adult health care services, 167 educational services, habilitative services, independent living 168 services, adult employment, and health insurance. 169 3. Disease self-management programs. 170 (c) There shall be at least one proposed transition program 171 associated with each one of the eight regions of the Children’s 172 Medical Services Network. 173 (d) The local health and transition services program shall 174 be evaluated by an organization or university that has expertise 175 and experience in evaluating health care programs. The 176 evaluation must be formative and cumulative and must include 177 program process and outcome measures, as well as client 178 outcomes. The results of the evaluation may be used by the 179 department to improve and develop other local health and 180 transition services programs. 181 Section 2. This act shall take effect July 1, 2012.