Senate Bill 1890

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    Florida Senate - 2000                                  SB 1890

    By Senator Klein





    28-846B-00

  1                      A bill to be entitled

  2         An act relating to end-of-life care; amending

  3         s. 381.026, F.S., relating to the Florida

  4         Patient's Bill of Rights and Responsibilities;

  5         revising the term "health care facility";

  6         modifying liability restrictions; including

  7         pain management and palliative care within

  8         these medical services for which a patient has

  9         a right to request, inquire about, or refuse as

10         treatment; creating the right to medical

11         treatment for pain management; expanding

12         applicability of responsibility for

13         distributing the statement of rights and

14         responsibilities to patients; revising the

15         statement of patient rights and

16         responsibilities to include reference to pain

17         management and palliative care; amending s.

18         395.1041, F.S.; specifying conditions under

19         which hospital personnel may withhold

20         resuscitation; amending s. 401.45, F.S.;

21         relating to emergency treatment, requiring use

22         of official form for valid do-not-resuscitate

23         order; specifying required signatures;

24         specifying authorized substitute signatures;

25         amending s. 445.597, F.S., relating to

26         licensure renewal requirements for certain

27         health care professionals; providing for

28         substitution of continuing education programs

29         or courses on end-of-life care and palliative

30         health care for any authorized domestic

31         violence continuing education program or course

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  1         taken within a specified period; amending s.

  2         765.102, F.S., relating to legislative findings

  3         and intent; adding legislative intent to allow

  4         a person to plan for future incapacity by

  5         executing a document; encouraging health care

  6         professionals to rapidly increase their

  7         understanding of end-of-life and palliative

  8         health care; requiring a statewide, culturally

  9         sensitive educational campaign on end-of-life

10         care for the general public; amending s.

11         765.203, F.S.; revising the suggested form for

12         designating a health care surrogate to include

13         reference to anatomical-gift declarations;

14         amending s. 765.204, F.S.; providing a

15         procedure for determining a principal's

16         capacity; revising provisions; providing

17         cross-references; amending s. 765.205, F.S.;

18         providing responsibilities of a health care

19         surrogate with respect to medical records of

20         the principal; amending s. 765.303, F.S.;

21         revising the suggested form for a living will;

22         changing the prerequisite circumstances that

23         activate the terms of a living will; amending

24         s. 765.305, F.S.; providing a procedure for

25         withholding or withdrawing medical treatment in

26         the absence of a living will; changing the

27         prerequisite circumstances on which a health

28         care surrogate must rely before authorizing

29         withholding or withdrawing of medical treatment

30         for another person; amending s. 765.306, F.S.,

31         relating to determination of patient condition;

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  1         changing the factors that must be evaluated for

  2         determining whether a living will may take

  3         effect; deleting the requirement for a

  4         consulting physician to separately examine the

  5         patient; amending s. 765.401, F.S.; providing a

  6         proxy to make health care decisions on behalf

  7         of a patient; deleting the alternative

  8         requirements that a proxy act in accordance

  9         with a written declaration or that the patient

10         has certain specified medical conditions before

11         a proxy may consent to withholding or

12         withdrawing life-prolonging procedures;

13         creating the End-of-Life Care Workgroup;

14         providing membership of the workgroup;

15         requiring a report; providing an effective

16         date.

17

18  Be It Enacted by the Legislature of the State of Florida:

19

20         Section 1.  Section 381.026, Florida Statutes, is

21  amended to read:

22         381.026  Florida Patient's Bill of Rights and

23  Responsibilities.--

24         (1)  SHORT TITLE.--This section may be cited as the

25  "Florida Patient's Bill of Rights and Responsibilities."

26         (2)  DEFINITIONS.--As used in this section and s.

27  381.0261, the term:

28         (a)  "Department" means the Department of Health.

29         (b)  "Health care facility" means a facility licensed

30  under chapter 395 or part II or part VI of chapter 400.

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  1         (c)  "Health care provider" means a physician licensed

  2  under chapter 458, an osteopathic physician licensed under

  3  chapter 459, or a podiatric physician licensed under chapter

  4  461.

  5         (d)  "Responsible provider" means a health care

  6  provider who is primarily responsible for patient care in a

  7  health care facility or provider's office.

  8         (3)  PURPOSE.--It is the purpose of this section to

  9  promote the interests and well-being of the patients of health

10  care providers and health care facilities and to promote

11  better communication between the patient and the health care

12  provider. It is the intent of the Legislature that health care

13  providers understand their responsibility to give their

14  patients a general understanding of the procedures to be

15  performed on them and to provide information pertaining to

16  their health care so that they may make decisions in an

17  informed manner after considering the information relating to

18  their condition, the available treatment alternatives, and

19  substantial risks and hazards inherent in the treatments.  It

20  is the intent of the Legislature that patients have a general

21  understanding of their responsibilities toward health care

22  providers and health care facilities.  It is the intent of the

23  Legislature that the provision of such information to a

24  patient eliminate potential misunderstandings between patients

25  and health care providers.  It is a public policy of the state

26  that the interests of patients be recognized in a patient's

27  bill of rights and responsibilities and that a health care

28  facility or health care provider may not require a patient to

29  waive his or her rights as a condition of treatment.  This

30  section shall not be used for any purpose in any civil or

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  1  administrative action and neither expands nor limits any

  2  rights or remedies provided under any other law.

  3         (4)  RIGHTS OF PATIENTS.--Each health care facility or

  4  provider shall observe the following standards:

  5         (a)  Individual dignity.--

  6         1.  The individual dignity of a patient must be

  7  respected at all times and upon all occasions.

  8         2.  Every patient who is provided health care services

  9  retains certain rights to privacy, which must be respected

10  without regard to the patient's economic status or source of

11  payment for his or her care.  The patient's rights to privacy

12  must be respected to the extent consistent with providing

13  adequate medical care to the patient and with the efficient

14  administration of the health care facility or provider's

15  office.  However, this subparagraph does not preclude

16  necessary and discreet discussion of a patient's case or

17  examination by appropriate medical personnel.

18         3.  A patient has the right to a prompt and reasonable

19  response to a question or request.  A health care facility

20  shall respond in a reasonable manner to the request of a

21  patient's health care provider for medical services, including

22  pain management or palliative care, to the patient.  The

23  health care facility shall also respond in a reasonable manner

24  to the patient's request for other services customarily

25  rendered by the health care facility to the extent such

26  services do not require the approval of the patient's health

27  care provider or are not inconsistent with the patient's

28  treatment.

29         4.  A patient in a health care facility has the right

30  to retain and use personal clothing or possessions as space

31  permits, unless for him or her to do so would infringe upon

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  1  the right of another patient or is medically or

  2  programmatically contraindicated for documented medical,

  3  safety, or programmatic reasons.

  4         (b)  Information.--

  5         1.  A patient has the right to know the name, function,

  6  and qualifications of each health care provider who is

  7  providing medical services to the patient.  A patient may

  8  request such information from his or her responsible provider

  9  or the health care facility in which he or she is receiving

10  medical services.

11         2.  A patient in a health care facility has the right

12  to know what patient support services are available in the

13  facility.

14         3.  A patient has the right to be given by his or her

15  health care provider information concerning diagnosis;,

16  planned course of treatment, including pain management and

17  palliative care; alternatives;, risks;, and prognosis, unless

18  it is medically inadvisable or impossible to give this

19  information to the patient, in which case the information must

20  be given to the patient's guardian or a person designated as

21  the patient's representative.  A patient has the right to

22  refuse this information.

23         4.  A patient has the right to refuse any treatment,

24  including pain management or palliative care, based on

25  information required by this paragraph, except as otherwise

26  provided by law. The responsible provider shall document any

27  such refusal.

28         5.  A patient in a health care facility has the right

29  to know what facility rules and regulations apply to patient

30  conduct.

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  1         6.  A patient has the right to express grievances to a

  2  health care provider, a health care facility, or the

  3  appropriate state licensing agency regarding alleged

  4  violations of patients' rights.  A patient has the right to

  5  know the health care provider's or health care facility's

  6  procedures for expressing a grievance.

  7         7.  A patient in a health care facility who does not

  8  speak English has the right to be provided an interpreter when

  9  receiving medical services if the facility has a person

10  readily available who can interpret on behalf of the patient.

11         (c)  Financial information and disclosure.--

12         1.  A patient has the right to be given, upon request,

13  by the responsible provider, his or her designee, or a

14  representative of the health care facility full information

15  and necessary counseling on the availability of known

16  financial resources for the patient's health care.

17         2.  A health care provider or a health care facility

18  shall, upon request, disclose to each patient who is eligible

19  for Medicare, in advance of treatment, whether the health care

20  provider or the health care facility in which the patient is

21  receiving medical services accepts assignment under Medicare

22  reimbursement as payment in full for medical services and

23  treatment rendered in the health care provider's office or

24  health care facility.

25         3.  A health care provider or a health care facility

26  shall, upon request, furnish a patient, prior to provision of

27  medical services, a reasonable estimate of charges for such

28  services.  Such reasonable estimate shall not preclude the

29  health care provider or health care facility from exceeding

30  the estimate or making additional charges based on changes in

31  the patient's condition or treatment needs.

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  1         4.  A patient has the right to receive a copy of an

  2  itemized bill upon request.  A patient has a right to be given

  3  an explanation of charges upon request.

  4         (d)  Access to health care.--

  5         1.  A patient has the right to impartial access to

  6  medical treatment or accommodations, regardless of race,

  7  national origin, religion, physical handicap, or source of

  8  payment.

  9         2.  A patient has the right to treatment for any

10  emergency medical condition that will deteriorate from failure

11  to provide such treatment.

12         3.  A patient has the right to medical treatment for

13  pain management.

14         (e)  Experimental research.--In addition to the

15  provisions of s. 766.103, a patient has the right to know if

16  medical treatment is for purposes of experimental research and

17  to consent prior to participation in such experimental

18  research.  For any patient, regardless of ability to pay or

19  source of payment for his or her care, participation must be a

20  voluntary matter; and a patient has the right to refuse to

21  participate.  The patient's consent or refusal must be

22  documented in the patient's care record.

23         (f)  Patient's knowledge of rights and

24  responsibilities.--In receiving health care, patients have the

25  right to know what their rights and responsibilities are.

26         (5)  RESPONSIBILITIES OF PATIENTS.--Each patient of a

27  health care provider or health care facility shall respect the

28  health care provider's and health care facility's right to

29  expect behavior on the part of patients which, considering the

30  nature of their illness, is reasonable and responsible. Each

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  1  patient shall observe the responsibilities described in the

  2  following summary.

  3         (6)  SUMMARY OF RIGHTS AND RESPONSIBILITIES.--Any

  4  health care provider who treats a patient in an office, or any

  5  health care facility licensed under chapter 395 which that

  6  provides emergency services and care or outpatient services

  7  and care to a patient, any health care provider who or admits

  8  and treats a patient, or a facility or setting regulated under

  9  part II or part VI of chapter 400 shall adopt and make

10  available to the patient, in writing, a statement of the

11  rights and responsibilities of patients, including:

12

13              SUMMARY OF THE FLORIDA PATIENT'S BILL

14                  OF RIGHTS AND RESPONSIBILITIES

15

16         Florida law requires that your health care provider or

17  health care facility recognize your rights while you are

18  receiving medical care and that you respect the health care

19  provider's or health care facility's right to expect certain

20  behavior on the part of patients.  You may request a copy of

21  the full text of this law from your health care provider or

22  health care facility.  A summary of your rights and

23  responsibilities follows:

24         A patient has the right to be treated with courtesy and

25  respect, with appreciation of his or her individual dignity,

26  and with protection of his or her need for privacy.

27         A patient has the right to a prompt and reasonable

28  response to questions and requests.

29         A patient has the right to know who is providing

30  medical services and who is responsible for his or her care.

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  1         A patient has the right to know what patient support

  2  services are available, including whether an interpreter is

  3  available if he or she does not speak English.

  4         A patient has the right to know what rules and

  5  regulations apply to his or her conduct.

  6         A patient has the right to be given by the health care

  7  provider information concerning diagnosis;, planned course of

  8  treatment, including pain management and palliative care;

  9  alternatives;, risks;, and prognosis.

10         A patient has the right to refuse any treatment,

11  including pain management or palliative care, except as

12  otherwise provided by law.

13         A patient has the right to be given, upon request, full

14  information and necessary counseling on the availability of

15  known financial resources for his or her care.

16         A patient who is eligible for Medicare has the right to

17  know, upon request and in advance of treatment, whether the

18  health care provider or health care facility accepts the

19  Medicare assignment rate.

20         A patient has the right to receive, upon request, prior

21  to treatment, a reasonable estimate of charges for medical

22  care.

23         A patient has the right to receive a copy of a

24  reasonably clear and understandable, itemized bill and, upon

25  request, to have the charges explained.

26         A patient has the right to impartial access to medical

27  treatment or accommodations, regardless of race, national

28  origin, religion, physical handicap, or source of payment.

29         A patient has the right to treatment for any emergency

30  medical condition that will deteriorate from failure to

31  provide treatment.

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  1         A patient has the right to know if medical treatment is

  2  for purposes of experimental research and to give his or her

  3  consent or refusal to participate in such experimental

  4  research.

  5         A patient has the right to express grievances regarding

  6  any violation of his or her rights, as stated in Florida law,

  7  through the grievance procedure of the health care provider or

  8  health care facility which served him or her and to the

  9  appropriate state licensing agency.

10         A patient is responsible for providing to the health

11  care provider, to the best of his or her knowledge, accurate

12  and complete information about present complaints, past

13  illnesses, hospitalizations, medications, and other matters

14  relating to his or her health.

15         A patient is responsible for reporting unexpected

16  changes in his or her condition to the health care provider.

17         A patient is responsible for reporting to the health

18  care provider whether he or she comprehends a contemplated

19  course of action, including pain management or palliative

20  care, and what is expected of him or her.

21         A patient is responsible for following the treatment

22  plan recommended by the health care provider.

23         A patient is responsible for keeping appointments and,

24  when he or she is unable to do so for any reason, for

25  notifying the health care provider or health care facility.

26         A patient is responsible for his or her actions if he

27  or she refuses treatment or does not follow the health care

28  provider's instructions.

29         A patient is responsible for assuring that the

30  financial obligations of his or her health care are fulfilled

31  as promptly as possible.

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  1         A patient is responsible for following health care

  2  facility rules and regulations affecting patient care and

  3  conduct.

  4         Section 2.  Paragraph (l) of subsection (3) of section

  5  395.1041, Florida Statutes, is amended to read:

  6         395.1041  Access to emergency services and care.--

  7         (3)  EMERGENCY SERVICES; DISCRIMINATION; LIABILITY OF

  8  FACILITY OR HEALTH CARE PERSONNEL.--

  9         (l)  Hospital emergency services personnel may withhold

10  or withdraw cardiopulmonary resuscitation if presented with an

11  order not to resuscitate executed pursuant to s. 401.45.

12  Facility staff and facilities shall not be subject to criminal

13  prosecution or civil liability, nor be considered to have

14  engaged in negligent or unprofessional conduct, for

15  withholding or withdrawing cardiopulmonary resuscitation

16  pursuant to such an order.

17         Section 3.  Paragraph (a) of subsection (3) of section

18  401.45, Florida Statutes, is amended to read:

19         401.45  Denial of emergency treatment; civil

20  liability.--

21         (3)(a)  Resuscitation may be withheld or withdrawn from

22  a patient by an emergency medical technician or paramedic if

23  evidence of an order not to resuscitate by the patient's

24  physician is presented to the emergency medical technician or

25  paramedic. An order not to resuscitate, to be valid, must be

26  on the form adopted by rule of the department. The form must

27  be signed by the patient's physician and by the patient or, if

28  the patient is incapable of giving informed consent, the

29  patient's health care surrogate or proxy, as provided under

30  chapter 765; a court-appointed guardian, as provided under

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  1  chapter 744; or a person acting pursuant to a durable power of

  2  attorney, as provided under chapter 709.

  3         Section 4.  Section 455.597, Florida Statutes, is

  4  amended to read:

  5         455.597  Requirement for instruction on domestic

  6  violence.--

  7         (1)(a)  The appropriate board shall require each person

  8  licensed or certified under chapter 458, chapter 459, chapter

  9  464, chapter 466, chapter 467, chapter 490, or chapter 491 to

10  complete a 1-hour continuing education course, approved by the

11  board, on domestic violence, as defined in s. 741.28, as part

12  of biennial relicensure or recertification.  The course shall

13  consist of information on the number of patients in that

14  professional's practice who are likely to be victims of

15  domestic violence and the number who are likely to be

16  perpetrators of domestic violence, screening procedures for

17  determining whether a patient has any history of being either

18  a victim or a perpetrator of domestic violence, and

19  instruction on how to provide such patients with information

20  on, or how to refer such patients to, resources in the local

21  community, such as domestic violence centers and other

22  advocacy groups, that provide legal aid, shelter, victim

23  counseling, batterer counseling, or child protection services.

24         (b)  Each such licensee or certificateholder shall

25  submit confirmation of having completed such course, on a form

26  provided by the board, when submitting fees for each biennial

27  renewal.

28         (c)  The board may approve additional equivalent

29  courses that may be used to satisfy the requirements of

30  paragraph (a).  Each licensing board that requires a licensee

31  to complete an educational course pursuant to this subsection

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  1  may include the hour required for completion of the course in

  2  the total hours of continuing education required by law for

  3  such profession unless the continuing education requirements

  4  for such profession consist of fewer than 30 hours biennially.

  5         (d)  Any person holding two or more licenses subject to

  6  the provisions of this subsection shall be permitted to show

  7  proof of having taken one board-approved course on domestic

  8  violence, for purposes of relicensure or recertification for

  9  additional licenses.

10         (e)  Failure to comply with the requirements of this

11  subsection shall constitute grounds for disciplinary action

12  under each respective practice act and under s. 455.624(1)(k).

13  In addition to discipline by the board, the licensee shall be

14  required to complete such course.

15         (2)  The board shall also require, as a condition of

16  granting a license under any chapter specified in paragraph

17  (1)(a), that each applicant for initial licensure under the

18  appropriate chapter complete an educational course acceptable

19  to the board on domestic violence which is substantially

20  equivalent to the course required in subsection (1).  An

21  applicant who has not taken such course at the time of

22  licensure shall, upon submission of an affidavit showing good

23  cause, be allowed 6 months to complete such requirement.

24         (3)  In lieu of completing a course as required in

25  subsection (1), a licensee or certificeholder may complete a

26  course in end-of-life care and palliative health care, if the

27  licensee or certificateholder has completed an approved

28  domestic violence course in the immediately preceding

29  biennium.

30         (4)(3)  Each board may adopt rules to carry out the

31  provisions of this section.

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  1         (5)(4)  Each board shall report to the President of the

  2  Senate, the Speaker of the House of Representatives, and the

  3  chairs of the appropriate substantive committees of the

  4  Legislature by March 1 of each year as to the implementation

  5  of and compliance with the requirements of this section.

  6         Section 5.  Section 765.102, Florida Statutes, is

  7  amended to read:

  8         765.102  Legislative findings and intent.--

  9         (1)  The Legislature finds that every competent adult

10  has the fundamental right of self-determination regarding

11  decisions pertaining to his or her own health, including the

12  right to choose or refuse medical treatment. This right is

13  subject to certain interests of society, such as the

14  protection of human life and the preservation of ethical

15  standards in the medical profession.

16         (2)  To ensure that such right is not lost or

17  diminished by virtue of later physical or mental incapacity,

18  the Legislature intends that a procedure be established to

19  allow a person to plan for incapacity by executing a document

20  or designating another person to direct the course of his or

21  her medical treatment upon his or her incapacity. Such

22  procedure should be less expensive and less restrictive than

23  guardianship and permit a previously incapacitated person to

24  exercise his or her full right to make health care decisions

25  as soon as the capacity to make such decisions has been

26  regained.

27         (3)  The Legislature recognizes that for some the

28  administration of life-prolonging medical procedures may

29  result in only a precarious and burdensome existence. In order

30  to ensure that the rights and intentions of a person may be

31  respected even after he or she is no longer able to

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  1  participate actively in decisions concerning himself or

  2  herself, and to encourage communication among such patient,

  3  his or her family, and his or her physician, the Legislature

  4  declares that the laws of this state recognize the right of a

  5  competent adult to make an advance directive instructing his

  6  or her physician to provide, withhold, or withdraw

  7  life-prolonging procedures, or to designate another to make

  8  the treatment decision for him or her in the event that such

  9  person should become incapacitated and unable to personally

10  direct his or her medical care.

11         (4)  The Legislature recognizes the need for all health

12  care professionals to rapidly increase their understanding of

13  end-of-life and palliative health care. Therefore, the

14  Legislature encourages the professional regulatory boards to

15  adopt appropriate standards and guidelines regarding

16  end-of-life care and pain management and encourages

17  educational institutions established to train health care

18  professionals and allied health professionals to implement

19  curricula to train such professionals to provide end-of-life

20  care, including pain management and palliative care.

21         (5)  The Department of Elderly Affairs, the Agency for

22  Health Care Administration, and the Department of Health shall

23  jointly create a campaign on end-of-life care for purposes of

24  educating the public. This campaign should include culturally

25  sensitive programs to improve understanding of end-of-life

26  care issues in minority communities.

27         Section 6.  Section 765.203, Florida Statutes, is

28  amended to read:

29         765.203  Suggested form of designation.--A written

30  designation of a health care surrogate executed pursuant to

31  this chapter may, but need not be, in the following form:

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  1

  2               DESIGNATION OF HEALTH CARE SURROGATE

  3

  4  Name:....(Last)....(First)....(Middle Initial)....

  5         In the event that I have been determined to be

  6  incapacitated to provide informed consent for medical

  7  treatment and surgical and diagnostic procedures, I wish to

  8  designate as my surrogate for health care decisions:

  9

10  Name:.........................................................

11  Address:......................................................

12  .......................................... Zip Code:........

13  Phone:................

14         If my surrogate is unwilling or unable to perform his

15  or her duties, I wish to designate as my alternate surrogate:

16  Name:.........................................................

17  Address:......................................................

18  .......................................... Zip Code:........

19  Phone:................

20         I fully understand that this designation will permit my

21  designee to make health care decisions, except for anatomical

22  gifts, when I have executed an anatomical-gift declaration

23  pursuant to law, and to provide, withhold, or withdraw consent

24  on my behalf; to apply for public benefits to defray the cost

25  of health care; and to authorize my admission to or transfer

26  from a health care facility.

27  Additional instructions (optional):...........................

28  ..............................................................

29  ..............................................................

30  ..............................................................

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  1         I further affirm that this designation is not being

  2  made as a condition of treatment or admission to a health care

  3  facility.  I will notify and send a copy of this document to

  4  the following persons other than my surrogate, so they may

  5  know who my surrogate is.

  6  Name:.........................................................

  7  Name:.........................................................

  8  ..............................................................

  9  ..............................................................

10  Signed:.......................................................

11  Date:.........................................................

12  Witnesses: 1.................................................

13             2.................................................

14         Section 7.  Subsection (2) of section 765.204, Florida

15  Statutes, is amended to read:

16         765.204  Capacity of principal; procedure.--

17         (2)  If a principal's capacity to make health care

18  decisions for herself or himself or provide informed consent

19  is in question, the attending physician shall evaluate the

20  principal's capacity and, if the physician concludes that the

21  principal lacks capacity, enter that evaluation in the

22  principal's medical record. If the attending physician has a

23  question as to whether the principal lacks capacity, another

24  physician shall also evaluate the principal's capacity, and.

25  if the second physician agrees that the principal lacks the

26  capacity to make health care decisions or provide informed

27  consent, the health care facility shall enter both physician's

28  evaluations in the principal's medical clinical record. and,

29  If the principal has designated a health care surrogate, the

30  facility shall notify such surrogate in writing that her or

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  1  his authority under the instrument has commenced, as provided

  2  in s. 765.205 or chapter 709.

  3         Section 8.  Section 765.205, Florida Statutes, is

  4  amended to read:

  5         765.205  Responsibility of the surrogate.--

  6         (1)  The surrogate, in accordance with the principal's

  7  instructions, unless such authority has been expressly limited

  8  by the principal, shall:

  9         (a)  Have authority to act for the principal and to

10  make all health care decisions for the principal during the

11  principal's incapacity, in accordance with the principal's

12  instructions, unless such authority has been expressly limited

13  by the principal.

14         (b)  Consult expeditiously with appropriate health care

15  providers to provide informed consent, and make only health

16  care decisions for the principal which he or she believes the

17  principal would have made under the circumstances if the

18  principal were capable of making such decisions.

19         (c)  Provide written consent using an appropriate form

20  whenever consent is required, including a physician's order

21  not to resuscitate.

22         (d)  Be provided access to the appropriate medical

23  clinical records of the principal.

24         (e)  Apply for public benefits, such as Medicare and

25  Medicaid, for the principal and have access to information

26  regarding the principal's income and assets and banking and

27  financial records to the extent required to make application.

28  A health care provider or facility may not, however, make such

29  application a condition of continued care if the principal, if

30  capable, would have refused to apply.

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  1         (2)  The surrogate may authorize the release of

  2  information and medical clinical records to appropriate

  3  persons to ensure the continuity of the principal's health

  4  care and may authorize the admission, discharge, or transfer

  5  of the principal to or from a health care facility or other

  6  facility or program licensed under chapter 400.

  7         (3)  If, after the appointment of a surrogate, a court

  8  appoints a guardian, the surrogate shall continue to make

  9  health care decisions for the principal, unless the court has

10  modified or revoked the authority of the surrogate pursuant to

11  s. 744.3115. The surrogate may be directed by the court to

12  report the principal's health care status to the guardian.

13         Section 9.  Section 765.303, Florida Statutes, is

14  amended to read:

15         (Substantial rewording of section. See

16         s. 765.303, F.S., for present text.)

17         765.303  Suggested form of a living will.--

18         (1)  A living will may, BUT NEED NOT, be in the

19  following form:

20                           Living Will

21         Declaration made this .... day of ...., ...(year)...,

22  I, ........, willfully and voluntarily make known my desire

23  that my dying not be artificially prolonged under the

24  circumstances set forth below.

25

26  PROCEDURE FOR MY LIVING WILL.--

27         Before proceeding in accordance with my living will, it

28  must be determined that:

29         I do not have a reasonable medical probability of

30  recovering capacity, so that I could exercise my right to make

31  my own decisions;

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  1         I have a terminal condition, I have an end-stage

  2  condition, or I am in a persistent vegetative state; and

  3         Any limitations or conditions expressed orally or in

  4  this written declaration have been carefully considered and

  5  satisfied.

  6

  7  PROCEDURE TO DETERMINE CAPACITY OF PRINCIPAL TO MAKE HEALTH

  8  CARE DECISIONS OR PROVIDE INFORMED CONSENT.--If I am unable to

  9  make health care decisions for myself or if my ability to give

10  informed consent is in question, my attending physician shall

11  evaluate my capacity and, if the physician concludes that I

12  lack capacity, enter that evaluation in my medical record. If

13  my attending physician has a question as to whether I lack

14  capacity, another physician shall also evaluate my capacity.

15  If the second physician agrees that I lack capacity to make

16  health care decisions, or to give informed consent, the health

17  care facility shall enter both physician's evaluations in my

18  clinical record and, if I have designated a health care

19  surrogate, the facility shall notify such surrogate in writing

20  that my surrogate's authority under this instrument has

21  commenced.

22

23  PROCEDURE FOR DETERMINATION OF CONDITION.--In determining

24  whether I have a terminal condition, I have an end-stage

25  condition, I am in a persistent vegetative state, or whether I

26  have a medical condition or limitation referred to in this

27  advance directive, my attending or treating physician and at

28  least one other consulting physician must separately examine

29  me. The findings of each such examination must be documented

30  in my medical record and signed by each examining physician

31  before life-prolonging procedures my be withheld or withdrawn.

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  1

  2  DECLARATION DIRECTING THAT LIFE-PROLONGING PROCEDURES BE

  3  WITHHELD OR WITHDRAWN.--I direct that life-prolonging

  4  procedures be withheld or withdrawn when the application of

  5  such procedures would serve only to prolong artificially the

  6  process of dying, and that I be permitted to die naturally

  7  with only the administration of medication or the performance

  8  of any medical procedure deemed necessary to provide me with

  9  comfort care or to alleviate pain.

10

11  INTENT OF DECLARATION.--It is my intention that this

12  declaration be honored by my family and physician as the final

13  expression of my legal right to refuse medical or surgical

14  treatment and to accept the consequences for such refusal.

15  This advance directive instrument shall travel with me as part

16  of my medical record.

17

18  PROCEDURES FOR REFUSAL TO COMPLY WITH ADVANCE DIRECTIVE.--I

19  recognize the conditional right under section 765.1105,

20  Florida Statutes, of my health care provider or facility to

21  refuse to comply with this directive if based on any act which

22  is contrary to the provider's or facility's moral or ethical

23  beliefs and if I am:

24         1.  Not in an emergency condition, and

25         2.  If I or my authorized representative has received

26  written information upon admission informing me or my

27  authorized representative of the policies of the health care

28  provider or facility regarding such moral or ethical beliefs.

29

30  If a health care provider or facility meets the requirements

31  of section 765.1105, Florida Statutes, and is unwilling to

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  1  carry out my wishes or a treatment decision of my surrogate

  2  because of moral or ethical beliefs, the health care provider

  3  or facility must within 7 days either:

  4         1.  Transfer me to another health care provider or

  5  facility and shall pay for such transport, as required under

  6  section 765.1105(2)(a), Florida Statutes, or

  7         2.  If I have not been transferred after 6 days after

  8  refusing to comply with my advance directive, carry out my

  9  wishes.

10

11  RIGHT TO REFUSE TO EXECUTE A NEW, A FACILITY'S, OR A HEALTH

12  CARE PROVIDER'S ADVANCE DIRECTIVE FORM.--Pursuant to section

13  765.110, Florida Statutes, a health care provider or health

14  care facility may not require me to execute an advance

15  directive using the facility's or provider's forms.

16

17  DESIGNATION OF MY HEALTH CARE SURROGATE.--In the event that I

18  have been determined to be unable to provide express and

19  informed consent regarding the withholding, withdrawal, or

20  continuation of life-prolonging procedures, I wish to

21  designate, as my surrogate to carry out the provisions of this

22  declaration:

23

24  Name:.........................................................

25  Address:......................................................

26  .............................................Zip Code:........

27  Phone:................

28

29  I understand the full import of this declaration, and I am

30  emotionally and mentally competent to make this declaration.

31  Additional Instructions (optional):

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  1  ..............................................................

  2  ..............................................................

  3  ..............................................................

  4                         ....(Signed)....

  5

  6  Two subscribing witnesses, one of whom is neither a spouse or

  7  a blood relative of the principal, must sign this document and

  8  provide the information indicated.

  9                         ....Witness....

10                         ....Address....

11                          ....Phone....

12                         ....Witness....

13                         ....Address....

14                          ....Phone....

15

16         (2)  The principal's failure to designate a surrogate

17  does not invalidate the living will.

18         Section 10.  Subsection (2) of section 765.305, Florida

19  Statutes, is amended to read:

20         765.305  Procedure in absence of a living will.--

21         (2)  Before exercising the incompetent patient's right

22  to forego treatment, the surrogate must be satisfied that:

23         (a)  The patient does not have a reasonable medical

24  probability of recovering capacity so that the right could be

25  exercised by the patient.

26         (b)  The patient is both mentally or and physically

27  incapacitated with no reasonable medical probability of

28  recovery, the patient has an end-stage condition, the patient

29  is in a persistent vegetative state, or the patient's physical

30  condition is terminal.

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  1         Section 11.  Section 765.306, Florida Statutes, is

  2  amended to read:

  3         765.306  Determination of patient condition.--In

  4  determining whether the patient has a terminal condition, has

  5  an end-stage condition, or is in a persistent vegetative state

  6  or may recover mental or and physical capacity, or whether a

  7  medical condition or limitation referred to in an advance

  8  directive exists, the patient's attending or treating

  9  physician and at least one other consulting physician must

10  separately examine the patient. The findings of each such

11  examination must be documented in the patient's medical record

12  and signed by the each examining physician before

13  life-prolonging procedures may be withheld or withdrawn.

14         Section 12.  Subsection (3) of section 765.401, Florida

15  Statutes, is amended to read:

16         765.401  The proxy.--

17         (3)  Before exercising the incapacitated patient's

18  rights to select or decline health care, the proxy must comply

19  with the pertinent provisions applicable to surrogates under

20  this chapter, except that a proxy's decision to withhold or

21  withdraw life-prolonging procedures, if challenged, must

22  either:

23         (a)  Be supported by a written declaration; or

24         (b)  If there is no written declaration, the patient

25  must have a terminal condition, have an end-stage condition,

26  or be in a persistent vegetative state, and the proxy's

27  decision must be supported by clear and convincing evidence

28  that the decision would have been the one the patient would

29  have chosen had the patient been competent.

30         Section 13.  End-of-Life Care Workgroup.--

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  1         (1)  There is created within the Department of Elderly

  2  Affairs the End-of-Life Care Workgroup. The workgroup shall:

  3         (a)  Examine reimbursement methodologies for

  4  end-of-life care;

  5         (b)  Identify end-of-life care standards that will

  6  enable all health care providers along the health-care

  7  continuum to participate in an excellent system of delivering

  8  end-of-life care; and

  9         (c)  Develop recommendations for incentives for

10  appropriate end-of-life care.

11         (2)  The workgroup is composed of the Secretary of

12  Elderly Affairs or his or her designee; the Secretary of

13  Health or his or her designee; the Director of Health Care

14  Administration or his or her designee; a member of the Senate,

15  appointed by the President of the Senate; a member of the

16  House of Representatives, appointed by the Speaker of the

17  House of Representatives; and one representative from each of

18  the following organizations: the Florida Medical Association,

19  the Florida Osteopathic Medical Association, the Florida

20  Chiropractic Association, the Florida Podiatric Medical

21  Association, the Florida Acupuncture Association, the Florida

22  Nurses Association, the Florida Optometric Association, the

23  Florida Pharmacy Association, the Florida Dental Association,

24  the Florida Association of Nursing Home Administrators, the

25  Florida Association of Occupational Therapy, the Florida

26  Association of Respiratory Therapy, the Florida Dietetic

27  Association, the Florida Hospital Association, Florida

28  Hospices and Palliative Care, Inc., the Florida Health Care

29  Association, and the Florida Association of Health Maintenance

30  Organizations.

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  1         (3)  The workgroup shall exist for 1 year and shall

  2  meet as often as necessary to carry out its duties and

  3  responsibilities. Within existing resources, the Department of

  4  Elderly Affairs shall provide support services to the

  5  workgroup. Workgroup members shall serve without compensation.

  6         (4)  The workgroup shall submit a report of its

  7  findings and recommendations to the Governor, the President of

  8  the Senate, and the Speaker of the House of Representatives by

  9  December 31, 2000.

10         (5)  This section expires May 1, 2001.

11         Section 14.  This act shall take effect upon becoming a

12  law.

13

14            *****************************************

15                          SENATE SUMMARY

16    Revises the Florida Patient's Bill of Rights and
      Responsibilities to include pain management and
17    palliative care within those medical services for which a
      patient has a right to request or refuse as treatment.
18    Revises the requirements for license renewal for certain
      health care professionals to provide that courses in
19    end-of-life care and palliative care may fulfill certain
      requirements for continuing education. Revises
20    requirements for designating a health care surrogate.
      Revises the suggested form of a living will. Revises the
21    procedures for determining a patient's condition for
      purposes of withholding life-prolonging procedures.
22    Creates the End-of-Life Care Workgroup. Requires that the
      workgroup study end-of-life care and make recommendations
23    to the Governor and Legislature. (See bill for details.)

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