Senate Bill sb0364e1

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  1                      A bill to be entitled

  2         An act relating to persons with developmental

  3         disabilities; amending s. 393.063, F.S.;

  4         redefining the term "retardation" to revise

  5         certain requirements for the standardized

  6         intelligence test used to make such

  7         determination; requiring that the Department of

  8         Children and Family Services adopt a rule for

  9         supported-living programs; amending s. 393.501,

10         F.S.; requiring the Department of Children and

11         Family Services to adopt rules for

12         administering certain waivers and delivering

13         services to persons who have developmental

14         disabilities; amending s. 765.104, F.S.;

15         authorizing a patient whose legal disability is

16         removed to amend or revoke the recognition of a

17         medical proxy and any uncompleted decision made

18         by that proxy; specifying when the amendment or

19         revocation takes effect; amending s. 765.401,

20         F.S.; providing for health care decisions for

21         persons having a developmental disability;

22         providing an effective date.

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24  Be It Enacted by the Legislature of the State of Florida:

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26         Section 1.  Subsections (42) and (50) of section

27  393.063, Florida Statutes, are amended to read:

28         393.063  Definitions.--For the purposes of this

29  chapter:

30         (42)  "Retardation" means significantly subaverage

31  general intellectual functioning existing concurrently with


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  1  deficits in adaptive behavior and manifested during the period

  2  from conception to age 18. "Significantly subaverage general

  3  intellectual functioning," for the purpose of this definition,

  4  means performance that which is two or more standard

  5  deviations from the mean score on a standardized intelligence

  6  test administered by a person authorized to administer such a

  7  test under chapter 458, 459, 490 or 491 specified in the rules

  8  of the department. "Adaptive behavior," for the purpose of

  9  this definition, means the effectiveness or degree with which

10  an individual meets the standards of personal independence and

11  social responsibility expected of his or her age, cultural

12  group, and community.

13         (50)  "Supported living" means a category of

14  individually determined services designed and coordinated in

15  such a manner as to provide assistance to adult clients who

16  require ongoing supports to live as independently as possible

17  in their own homes, to be integrated into the community, and

18  to participate in community life to the fullest extent

19  possible. The department shall adopt rules that specify the

20  number of persons having a developmental disability who may

21  live together in a single housing unit in a supported-living

22  program.

23         Section 2.  Section 393.501, Florida Statutes, is

24  amended to read:

25         393.501  Rulemaking.--

26         (1)  The department shall adopt rules to administer

27  carry out the provisions of this chapter. The rules must

28  include:

29         (1)  Provisions for administering waivers authorized

30  under s. 409.906 for developmental services and home and

31  community-based services, including eligibility criteria for


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  1  providers and recipients; criteria and procedures for

  2  enrollment and termination; qualifications for providing and

  3  receiving services; criteria for authorizing and using

  4  services; and standards for the quality and delivery of

  5  services.

  6         (2)  Standards and procedures for coordinating support

  7  services, including criteria for applications and for

  8  determining eligibility for services for developmental

  9  disabilities, procedures for support planning, the

10  responsibilities of support coordinators, and standards for

11  the quality and delivery of services.

12         (3)  Provisions for establishing a supported living

13  program, including definitions of terms; standards governing

14  eligibility for services, selection of housing, selection of

15  providers by participants, and planning for services; and

16  requirements for ongoing monitoring.

17         (4)(2)  Requirements for Such rules shall address the

18  number of facilities on a single parcel or adjacent parcels of

19  land, and, in addition, for ICF/MR, the rate and location of

20  facility development and level of care for intermediate care

21  facilities for the developmentally disabled.

22         Section 3.  Subsection (4) is added to section 765.104,

23  Florida Statutes, to read:

24         765.104  Amendment or revocation.--

25         (4)  Any patient for whom a medical proxy has been

26  recognized under s. 765.401 and for whom any previous legal

27  disability that precluded the patient's ability to consent is

28  removed may amend or revoke the recognition of the medical

29  proxy and any uncompleted decision made by that proxy. The

30  amendment or revocation takes effect when it is communicated

31  to the proxy, the health care provider, or the health care


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  1  facility in writing or, if communicated orally, in the

  2  presence of a third person.

  3         Section 4.  Subsections (1) and (3) of section 765.401,

  4  Florida Statutes, are amended to read:

  5         765.401  The proxy.--

  6         (1)  If an incapacitated the patient has not executed

  7  an advance directive, or designated a surrogate to execute an

  8  advance directive, or the designated or alternate surrogate is

  9  no longer available to make health care decisions, health care

10  decisions may be made for the patient by any of the following

11  individuals, in the following order of priority, if no

12  individual in a prior class is reasonably available, willing,

13  or competent to act:

14         (a)  The judicially appointed guardian of the patient

15  or the guardian advocate of the person having a developmental

16  disability as defined in s. 393.063, who has been authorized

17  to consent to medical treatment, if such guardian has

18  previously been appointed; however, this paragraph shall not

19  be construed to require such appointment before a treatment

20  decision can be made under this subsection;

21         (b)  The patient's spouse;

22         (c)  An adult child of the patient, or if the patient

23  has more than one adult child, a majority of the adult

24  children who are reasonably available for consultation;

25         (d)  A parent of the patient;

26         (e)  The adult sibling of the patient or, if the

27  patient has more than one sibling, a majority of the adult

28  siblings who are reasonably available for consultation;

29         (f)  An adult relative of the patient who has exhibited

30  special care and concern for the patient and who has

31  maintained regular contact with the patient and who is


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  1  familiar with the patient's activities, health, and religious

  2  or moral beliefs; or

  3         (g)  A close friend of the patient.

  4         (3)  Before exercising the incapacitated patient's

  5  rights to select or decline health care, the proxy must comply

  6  with the provisions of ss. 765.205 and 765.305, except that a

  7  proxy's decision to withhold or withdraw life-prolonging

  8  procedures must be supported by clear and convincing evidence

  9  that the decision would have been the one the patient would

10  have chosen had the patient been competent or, if there is no

11  indication of what the patient would have chosen, that the

12  decision is in the patient's best interest. Before exercising

13  the rights of a person who has a developmental disability as

14  defined under s. 393.063(12) to withhold or withdraw

15  life-prolonging procedures, a proxy must comply with s.

16  393.12.

17         Section 5.  This act shall take effect July 1, 2002.

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