HB 279

A bill to be entitled
2An act relating to health care transition programs and
3services for adolescents and young adults who have
4special health care needs; providing legislative
5intent; establishing the Florida Health And Transition
6Services (FloridaHATS) program within the Division of
7Children's Medical Services Network in the Department
8of Health to implement health care transition programs
9for adolescents and young adults who have special
10health care needs; specifying duties of the division
11with respect to the oversight, implementation, and
12coordination of the program; requiring that the
13program provide technical assistance to communities,
14providers, and organizations; requiring the Department
15of Health, in partnership with the Agency for Health
16Care Administration, to identify options for
17addressing the compensation of health care providers
18and improving access to adult and specialty health
19care for adolescents and young adults who have special
20health care needs; requiring the Department of Health
21to work with the Office of Insurance Regulation to
22explore and recommend effective policies that address
23medical management and health care transition services
24for adolescents and young adults who have special
25health care needs; requiring the Department of Health
26to work with community-based pediatric and adult
27health care providers to explore and recommend the
28development of local health and transition services
29programs in each of the regions of the Children's
30Medical Services Network; providing requirements for
31program structure and design; specifying the services
32that may be offered by local health and transition
33services programs; requiring that at least one
34proposed health and transition services program be
35associated with each region of the Children's Medical
36Services Network; requiring an evaluation of the
37program; providing an effective date.
39Be It Enacted by the Legislature of the State of Florida:
41     Section 1.  Legislative intent; health care transition
42programs and services for adolescents and young adults who have
43special health care needs.-
44     (1)  It is the intent of the Legislature to provide a
45strategic and comprehensive approach to the development and
46implementation of effective health care transition programs and
47services for adolescents and young adults who have special
48health care needs. The Health Care Transition Services Task
49Force for Youth and Young Adults with Disabilities developed a
50statewide plan to promote the development of such health care
51transition services in accordance with chapter 2008-211, Laws of
52Florida, and outlined the plan in the task force's subsequent
54     (2)  A program called the Florida Health And Transition
55Services (FloridaHATS) is established within the Division of
56Children's Medical Services Network, which shall be responsible
58     (a)  Overseeing and implementing the national maternal and
59child health goals, using existing state plans, in order to
60implement effective transition programs for adolescents and
61young adults who have special health care needs. As used in this
62section, the term "adolescents and young adults who have special
63health care needs" means individuals who are 12 through 26 years
64of age; who have chronic physical, developmental, behavioral, or
65emotional conditions; and who require health care or related
66services of a type or amount beyond that which is generally
67required by adolescents or young adults.
68     (b)  Developing a planning and implementation process and
69the necessary guides for use by community providers and
70organizations in developing coordinated systems of services for
71adolescents and young adults who have special health care needs.
72The coordinated system of services shall include different
73models that accommodate the geographic and cultural diversity in
74the state and that are adapted to the local needs of communities
75and to local health services delivery systems. Furthermore, the
76models shall promote the integration of health care transition
77services with transition programs in education, vocational
78rehabilitation, and independent living, and shall address the
79varying needs of subpopulations, such as students who are
80enrolled in postsecondary educational institutions and
81individuals in the child welfare or juvenile justice systems.
82     (c)  Developing and disseminating resource guides that
83outline the various public and private health care financing
84options, including commercial insurance, and the respective
85health care benefits.
86     (d)  Coordinating the program with educational
87institutions, including medical centers, to identify and make
88available for health care providers existing training programs
89regarding the principles, objectives, and methods for the
90successful transition of adolescents and young adults who have
91special health care needs to adult health care providers.
92     (e)  Maintaining and updating the FloridaHATS's website
93with web-based materials related to health care transition
94services which can be used by adolescents and young adults who
95have special health care needs and their families, providers,
96and others involved in health care transition.
97     (f)  Collecting and disseminating information in specific
98clinical areas concerning evidenced-based practices and best
99practices for providing health care transition services for
100adolescents and young adults who have chronic special health
101care needs or disabilities.
102     (g)  Providing technical assistance to communities,
103providers, and organizations that are involved in the
104development and implementation of systems of services for
105adolescents and young adults who have special health care needs.
106     (h)  Developing and disseminating quality improvement and
107evaluation components for health care transition programs. The
108quality improvement and evaluation components must include a
109common or comparable set of performance measures for all
110entities that provide health care transition services for
111adolescents and young adults who have special health care needs.
112     (i)  Establishing a network of experts in the fields of
113pediatric and adolescent medicine, adult medicine, and allied
114health to provide technical assistance and recommendations
115regarding best practices and policy guidance in health care
117     (3)  The Department of Health shall work in partnership
118with the Agency for Health Care Administration to identify
119potential waiver or state plan options that address health care
120provider compensation strategies, including, but not limited to,
121co-management, care plan development and oversight, provision of
122a medical home, and use of telehealth technology to improve
123access to adult and specialty health care for adolescents and
124young adults who have special health care needs.
125     (4)  The Department of Health shall work with the Office of
126Insurance Regulation to explore and recommend effective policies
127that address medical management and health care transition
128services that are based on a patient-centered medical home model
129for adolescents and young adults who have special health care
131     (5)  The Department of Health shall also work with
132community-based pediatric and adult health care providers to
133explore and recommend the development of local health and
134transition services programs in each of the eight regions of the
135Children's Medical Services Network which meet the following
137     (a)  The proposed program structure and design must be
138adapted to the needs of the local community and health services
139delivery system; however, the following elements shall be in
140place in order to ensure the success of a local health and
141transition services program:
142     1.  A consultative partnership between adult and pediatric
143health care providers in a major medical health care
144organization or an academic medical setting for purposes of the
145transition of adolescents and young adults to adult health care
147     2.  Community-based health care services that are provided
148under agreements with major health care organizations or
149academic medical centers for the purpose of providing
150consultation concerning the management of special health care
152     3.  Community-based support organizations that can provide
153assistance with services such as supported living and
154employment, health insurance, and support services to maintain
155the young adult in the community.
156     4.  A medical home that provides for coordinated and
157multidisciplinary care and focuses on engaging adult health care
158providers in the care and treatment of adolescents or young
160     (b)  The following services must be offered by the local
161health and transition services program to individuals who are
162served in the local health and transition services program:
163     1.  An assessment of health needs, education and vocational
164status and needs, and health insurance status.
165     2.  In coordination with the educational system, community-
166based organizations, and the vocational system, a plan for
167transition services, which includes adult health care services,
168educational services, habilitative services, independent living
169services, adult employment, and health insurance.
170     3.  Disease self-management programs.
171     (c)  There shall be at least one proposed transition
172program associated with each one of the eight regions of the
173Children's Medical Services Network.
174     (d)  The local health and transition services program shall
175be evaluated by an organization or university that has expertise
176and experience in evaluating health care programs. The
177evaluation must be formative and cumulative and must include
178program process and outcome measures, as well as client
179outcomes. The results of the evaluation may be used by the
180department to improve and develop other local health and
181transition services programs.
182     Section 2.  This act shall take effect July 1, 2012.

CODING: Words stricken are deletions; words underlined are additions.