Florida Senate - 2021                        COMMITTEE AMENDMENT
       Bill No. PCS (211898) for CS for SB 272
       
       
       
       
       
       
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                              LEGISLATIVE ACTION                        
                    Senate             .             House              
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       The Committee on Appropriations (Rouson) recommended the
       following:
       
    1         Senate Amendment 
    2  
    3         Delete lines 34 - 72
    4  and insert:
    5  members:
    6         (a) As appointed by the Governor:
    7         1. A representative of the Department of Health.
    8         2. A representative of the Agency for Health Care
    9  Administration.
   10         3. A representative of the Office of Insurance Regulation.
   11         4. A representative of the Department of Education.
   12         5. One geneticist practicing in this state.
   13         6. One registered nurse or advanced practice registered
   14  nurse who is licensed and practicing in this state with
   15  experience in treating rare diseases.
   16         7. One hospital administrator from a hospital in this state
   17  which provides care to individuals diagnosed with rare diseases.
   18         8. A pharmacist who is licensed and practicing in this
   19  state who has experience with drugs that are used in the
   20  treatment of rare diseases.
   21         9. A representative of the biotechnology industry.
   22         10. A representative of health insurance companies.
   23         (b) As appointed by the President of the Senate:
   24         1. A representative from an academic research institution
   25  in this state which receives grant funding for research
   26  regarding rare diseases.
   27         2. A physician who is licensed under chapter 458 or chapter
   28  459 and practicing in this state with experience in treating
   29  rare diseases.
   30         3. An individual who is 18 years of age or older who has a
   31  rare disease.
   32         4. An individual who is a caregiver of an individual with a
   33  rare disease.
   34         5. A representative of an organization operating in this
   35  state which provides care or other support to individuals with
   36  rare disease.
   37         (c) As appointed by the Speaker of the House of
   38  Representatives:
   39         1. A representative from an academic research institution
   40  in this state which receives grant funding for research
   41  regarding rare disease.
   42         2. A physician who is licensed under chapter 458 or chapter
   43  459 and practicing in this state with experience in treating
   44  rare diseases.
   45         3. An individual who is 18 years of age or older who has a
   46  rare disease.
   47         4. An individual who is a caregiver of an individual with a
   48  rare disease.
   49         5. A representative of organizations in this state which
   50  provide care or other support to individuals with rare diseases.
   51  
   52  Any vacancy on the advisory council must be filled in the same
   53  manner as the original appointment.
   54         (3) The initial members of the advisory council must be
   55  appointed by September 1, 2021. Each member must be appointed to
   56  a 4-year term of office. However, in order to achieve staggered
   57  terms, each of the initial members appointed pursuant to
   58  paragraph (2)(a) must be appointed to a 2-year term. The