Florida Senate - 2024                            (NP)    SR 1802
       
       
        
       By Senator Calatayud
       
       
       
       
       
       38-01927-24                                           20241802__
    1                          Senate Resolution                        
    2         A resolution recognizing February 15, 2024, as
    3         Angelman Syndrome Awareness Day.
    4  
    5         WHEREAS, Angelman syndrome is a rare, neurogenetic disorder
    6  that affects chromosome 15, resulting in a person’s intellectual
    7  and developmental delay, and
    8         WHEREAS, about 1 in 20,000 people in the United States are
    9  affected by Angelman syndrome, and
   10         WHEREAS, a primary goal of the Department of Health’s Rare
   11  Disease Advisory Council is to identify the data necessary to
   12  understand the population with rare diseases in this state,
   13  including the incidence of Angelman syndrome, and
   14         WHEREAS, the University of Florida College of Medicine’s
   15  Division of Genetics and Metabolism provides leading research in
   16  the treatment of Angelman syndrome, and the Nicklaus Children’s
   17  Hospital in Miami offers care through its Angelman Syndrome
   18  Clinic, and
   19         WHEREAS, the purpose of Angelman Syndrome Awareness Day is
   20  to raise awareness and understanding of this condition, mobilize
   21  people to action, encourage fundraising, promote research and
   22  educational resources, and remember those affected by Angelman
   23  syndrome, and
   24         WHEREAS, with early identification and treatment, the
   25  medical, sleep, seizure, and developmental issues associated
   26  with Angelman syndrome may be managed, and
   27         WHEREAS, the Angelman Syndrome Foundation and the
   28  Foundation for Angelman Syndrome Therapeutics provide advocacy,
   29  education, support, and access to resources for patients,
   30  families, and researchers around the world, NOW, THEREFORE,
   31  
   32  Be It Resolved by the Senate of the State of Florida:
   33  
   34         That the Florida Senate hereby recognizes February 15,
   35  2024, as Angelman Syndrome Awareness Day.