Skip to Navigation | Skip to Main Content | Skip to Site Map

FLHouse.gov | Mobile Site

Senate Tracker: Sign Up | Login

The Florida Senate

Track This Bill

Glossary of Legislative Terms

HB 1381: Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases

GENERAL BILL by Franklin

Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Authorizes licensed physicians to prescribe & eligible facilities to administer experimental treatments; requires approval of specified platform or master protocol by institutional review board; requires DOH to establish & maintain patient registry; requires DOH to annually publish specified report; encourages health insurers & health maintenance organizations to provide specified insurance coverage for experimental treatments; authorizes licensed physicians & eligible facilities to receive reimbursement for experimental treatments; requires manufacturers of experimental treatments to provide for specified temporary price concession; requires DOH to adopt by rule certain procedures for licensing of experimental treatment centers.

Effective Date: upon becoming a law
 Last Action: 1/15/2026 House - Now in Health Professions & Programs Subcommittee
Bill Text: PDF

View By Bill Version View By Category

Expand All Collapse All

  • Bill History

    Date Chamber Action
    1/9/2026 House • Filed
    1/13/2026 House • 1st Reading (Original Filed Version)
    1/15/2026 House • Referred to Health Professions & Programs Subcommittee
    • Referred to Health Care Budget Subcommittee
    • Referred to Health & Human Services Committee
    • Now in Health Professions & Programs Subcommittee

    Top of SectionTop of Page

  • HB 1381, Original Filed Version (Current Bill Version) Posted 1/9/2026 at 12:37 PM

    Bill Text:   PDF
    Analyses:   None

    Related Bills (5)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    H 1383 Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Linked Last Action: 1/15/2026 H Now in Health Professions & Programs Subcommittee Track This Bill
    H 1385 Trust Funds/Creation/Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Linked Last Action: 1/15/2026 H Now in Health Professions & Programs Subcommittee Track This Bill
    S 1552 Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Burgess Identical Last Action: 1/22/2026 S Introduced Track This Bill
    S 1554 Public Records/Experimental Treatment Outcomes Burgess Compare Last Action: 1/22/2026 S Introduced Track This Bill
    S 1556 Experimental Treatment Access Trust Fund/Department of Health Burgess Compare Last Action: 1/22/2026 S Introduced Track This Bill

    Citations - Statutes (1)

    Citation Catchline Location in Bill Location In Bill Help
    499.0295 Experimental treatments for terminal conditions. Page 3 (pdf)

    Top of SectionTop of Page