SB 1552: Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases
GENERAL BILL by Burgess
Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Citing this act as the “Promising Pathways Act"; authorizing licensed physicians to prescribe and eligible facilities to administer experimental treatments, if certain requirements are met; requiring the Department of Health to establish and maintain a patient registry for specified purposes; encouraging health insurers and health maintenance organizations to provide specified insurance coverage for experimental treatments; authorizing licensed physicians and eligible facilities to receive reimbursement for the prescription or administration of experimental treatments if certain requirements are met; requiring manufacturers of experimental treatments to provide for a specified temporary price concession set by the department, etc.
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Bill History
Date Chamber Action 1/9/2026 Senate • Filed
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SB 1552, Original Filed Version (Current Bill Version) Posted 1/9/2026 at 8:26 AM
Bill Text: Web Page | PDF Analyses: None Related Bills (5)
Bill Number Subject Filed By Relationship Last Action and Location Track Bills S 1554 Public Records/Experimental Treatment Outcomes Burgess Linked Last Action: 1/9/2026 S Filed 
S 1556 Experimental Treatment Access Trust Fund/Department of Health Burgess Linked Last Action: 1/9/2026 S Filed
H 1381 Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Identical Last Action: 1/9/2026 H Filed
H 1383 Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Compare Last Action: 1/9/2026 H Filed
H 1385 Trust Funds/Creation/Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Compare Last Action: 1/9/2026 H Filed
Citations - Statutes (1)
Citation Catchline Location in Bill Location In Bill Help 499.0295 Experimental treatments for terminal conditions. Page 3 (pdf)