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SB 1552: Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases

GENERAL BILL by Burgess

Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Citing this act as the “Promising Pathways Act"; authorizing licensed physicians to prescribe and eligible facilities to administer experimental treatments, if certain requirements are met; requiring the Department of Health to establish and maintain a patient registry for specified purposes; encouraging health insurers and health maintenance organizations to provide specified insurance coverage for experimental treatments; authorizing licensed physicians and eligible facilities to receive reimbursement for the prescription or administration of experimental treatments if certain requirements are met; requiring manufacturers of experimental treatments to provide for a specified temporary price concession set by the department, etc.

Effective Date: Upon becoming a law
Last Action: 1/22/2026 Senate - Introduced
Bill Text: Web Page | PDF



Bill History

Date Chamber Action
1/9/2026 Senate • Filed
1/16/2026 Senate • Referred to Health Policy; Appropriations Committee on Health and Human Services; Appropriations
1/22/2026 Senate • Introduced