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SB 1552: Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases

GENERAL BILL by Burgess

Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Citing this act as the “Promising Pathways Act"; authorizing licensed physicians to prescribe and eligible facilities to administer experimental treatments, if certain requirements are met; requiring the Department of Health to establish and maintain a patient registry for specified purposes; encouraging health insurers and health maintenance organizations to provide specified insurance coverage for experimental treatments; authorizing licensed physicians and eligible facilities to receive reimbursement for the prescription or administration of experimental treatments if certain requirements are met; requiring manufacturers of experimental treatments to provide for a specified temporary price concession set by the department, etc.

Effective Date: Upon becoming a law
 Last Action: 1/22/2026 Senate - Introduced
Bill Text: Web Page | PDF
Senate Committee References:
  1. Health Policy (HP)
  2. Appropriations Committee on Health and Human Services (AHS)
  3. Appropriations (AP)

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  • Bill History

    Date Chamber Action
    1/9/2026 Senate • Filed
    1/16/2026 Senate • Referred to Health Policy; Appropriations Committee on Health and Human Services; Appropriations
    1/22/2026 Senate • Introduced

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  • SB 1552, Original Filed Version (Current Bill Version) Posted 1/9/2026 at 8:26 AM

    Bill Text:   Web Page | PDF
    Analyses:   None

    Related Bills (5)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    S 1554 Public Records/Experimental Treatment Outcomes Burgess Linked Last Action: 1/22/2026 S Introduced Track This Bill
    S 1556 Experimental Treatment Access Trust Fund/Department of Health Burgess Linked Last Action: 1/22/2026 S Introduced Track This Bill
    H 1381 Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Identical Last Action: 1/15/2026 H Now in Health Professions & Programs Subcommittee Track This Bill
    H 1383 Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Compare Last Action: 1/15/2026 H Now in Health Professions & Programs Subcommittee Track This Bill
    H 1385 Trust Funds/Creation/Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Compare Last Action: 1/15/2026 H Now in Health Professions & Programs Subcommittee Track This Bill

    Citations - Statutes (1)

    Citation Catchline Location in Bill Location In Bill Help
    499.0295 Experimental treatments for terminal conditions. Page 3 (pdf)

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